PERCEPTION OF ILLNESS AND SOCIAL SUPPORT IN WOMEN WITH RHEUMATOID ARTHRITIS

Rojas-Alcayaga, Gonzalo; Porre, Madeleine; Sassenseld, Andre; Sabugo, Francisca; Wurmann, Pamela; Moncada, laura; Molina, Yerko; Cuchacovich, Miguel

Keywords: rheumatoid arthritis, social support, qualitative research, health perceptions

Abstract

Objetive: The aim of this study was to identify the perceptions about disease, social support and quality of life in adult women with Rheumatoid Arthritis (AR). Methods: Qualitative and exploratory design using narrative analysis to identify perceptions about the disease in AR patients with confirmed diagnosis in base to ACR criteria. Fourteen (14) adult women (33 to 76 years old) took part of eight sessions of group discussion which were recorded. Results: Three fields of meanings (categories) were identified; personal and family impact, emotional reaction and social relationship. The disease is perceived like a very disability condition that change social role. Great difficulties in emotional expression, low knowledge of joint characteristics and not acceptation of physical restrictions due to impairment were the main illness patient experiences. Conclusions: The disease starting is perceived like a vital break in the personal history life that drive toward social role restructuring with adaptations difficulties. A suitable communication with physician and therapeutic group participation are perceived like an important instrumental and emotional support for new life situation adjustment.

Más información

Fecha de publicación: 2012
Año de Inicio/Término: 19-21 Agosto
Idioma: English